|
March 24, 2000
News this month
Medical problems of international adoptees
Increasingly,
Americans seeking to adopt a child are turning to Russia, China,
Eastern Europe, Southeast Asia and South America. In 1998, about
15,000 of these orphans were adopted by U.S. citizens, a doubling
over 1988 levels. Those interested in adoptions should be aware
of several recent studies that have described the host of physical
and emotional problems that may interfere with the adjustment of
these children to their new families.
Recent studies have described a host of physical
and emotional problems that may interfere with the adjustment of these
children to their new families.
The majority has lived in institutions in poverty-stricken countries,
where nutrition may be inadequate and hygiene poor. Some have endured
emotional and physical neglect, been infected with intestinal parasites,
hepatitis, tuberculosis or suffered from lead poisoning, conditions
that are often not diagnosed. Compounding the problem is the fact
that immigrants to the U.S. younger than 15 years old are not required
to have blood tests either in their native country or when they enter
the U.S., unless risk factors are identified.
Checking for lead poisoning
Lead poisoning is one example. To determine the extent of lead poisoning
among these children, the federal Centers for Disease Control and
Prevention (CDC) began collecting data from 12 international adoption
medical specialists in the U.S. identified through the Joint Council
on International Childrens Services and two collaborating medical
specialists. The results were reported in the Feb. 11 issue of Morbidity
and Mortality Report.
Of the 14 sites, nine centers had data on blood lead tests from children
who immigrated from 1991 to 1999. The majority of the children were
from Russia and China. In all, 1,760 children were tested and 111
had elevated levels of lead. The prevalence of elevated blood lead
levels ranged from 1 to 13 percent among Chinese adoptees and from
1 to 5 percent among Russian adoptees. A handful of the children from
China had such high levels they required chelation therapy to reduce
their levels. Lead poisoning can impair intelligence and cause behavioral
problems.
For some adopted children, blood lead testing occurred soon after
arriving in the U.S., suggesting that exposure occurred before emigration.
Sources of lead exposure outside the U.S. include leaded gasoline
exhaust, industrial emissions, traditional medicines, some cosmetics,
ceramic ware and foods. Among 223 Chinese children surveyed by one
site, the prevalence of elevated lead levels was 2.3 times higher
(18%) among children tested within four weeks of arrival in the United
States than among children tested after four weeks (8%).
Reports of tuberculosis; other diseases
Other studies have identified the dangers of not screening for infectious
diseases in these children. A study published in The New England
Journal of Medicine last fall outlined how one adopted childs
tuberculosis went undiagnosed for two years until his female guardian
contracted the disease. The boy, an immigrant from the Marshall Islands,
had never been screened for TB. In all, 118 people he had come in
contact with were given preventive treatment.
Many parents and physicians in the U.S. are not
aware of the need for proper evaluation and follow-up of these children.
Educating parents and physicians
In that same issue, Dr. Laurie Miller, an adoption medicine specialist
in Boston, wrote an accompanying editorial. She noted that, despite
the recommendations of the American Academy of Pediatrics and other
health organizations, many parents and physicians in the U.S. are
not aware of the need for proper evaluation and follow-up of these
children. Nor do they know about the existence of adoption medicine
specialists in the U.S.
Dr. Miller outlined several assumptions that continue to plague the
international adoption system, including:
- Screening upon arrival
in the U.S. is not necessary because the child was screened in
his country of origin.
- Children dont
need to be screened because they look healthy.
- Follow-up screening
is not necessary (a problem because some diseases take weeks to
show up).
- Immunizations performed
in the countries of origin will adequately protect the child.
Physician Referral Online
A free and confidential service
of Yale-New Haven Hospital.
Physician Referral Online
Using your own criteria, you can request information from a database
of 900 area physicians who have registered to participate.
Request an appointment
We would be happy to assist you in scheduling an appointment with
a member of the hospital's medical staff. Use the link above or
call:
203-688-2000
or toll free
1-888-700-6543
to talk with a referral coordinator.
|
 |

What parents should do before an international adoption
The
data from adoptees in the Yale International Adoption Clinic was
similar to the CDC results. Of the 93 children screened here, 22
were from China and 38 were from Russia. We saw elevated lead levels
in three of the children from China and one from Russia. The CDC
study once again underscores the need for careful evaluation of
these children by physicians familiar with these issues.
The International Adoption Clinic
In the Yale International Adoption Clinic, we now see an average
of three children every Monday morning. This correlates with the
overall increase we see nationally. A typical evaluation usually
takes a couple of hours. Our nurse practitioner first addresses
the parents general questions, which may include issues surrounding
diet, sleeping patterns or tantrums. Then one of the pediatric infectious
disease specialists performs a complete medical examination, after
which our behavioral/ developmental pediatrician provides an age-appropriate
assessment of the childs development in gross motor, fine
motor and language skills. Blood tests recommended by the American
Academy of Pediatrics are performed at the end of the visit. In
a few days, we have the results from the lab work back and we call
the parent and send a letter to the childs regular pediatrician.
The parents also get a copy of our letter.
half of the internationally adopted children we tested
had a major medical issue at the time of their arrival.
No X-ray vision
One of the things I emphasize to parents is that we pediatricians
cant tell the health of a child just by looking at him or her.
Physicians dont have X-ray eyes. Thats the lesson we learned
in 1989 when the work we did in Minnesota showed that half of the
internationally adopted children we tested had a major medical issue
at the time of their arrival. You have to do the blood work to know
exactly whats going on, a point Dr. Miller makes loud and clear
in her editorial.
Shift in trends
Before 1991, 70 percent of international adoptions came from Korea,
where the children are raised in foster homes, not orphanages. These
children tend to have better nutrition and better development. Adoptions
from Romania began in 1991 and were quickly followed by the opening
of programs in Russia and China. In 1991, Korea limited the number
of adoptable children and now 70 percent of the children come from
China and Russia, 20 percent from Korea and 10 percent from Southeast
Asia and South America.
look for written findings that include explicit information about the head, eyes, nose, throat, chest, heart, abdomen, etc.
Steps to take before adoption
Parents interested in international adoptions should know what to
expect. A lot depends on the agency working for them.
First, the agency should supply baseline data on the childthe
height, weight and head circumference at birth, as well as at regular
intervals. Its important to see the growth patterns over time.
There should also be detailed information in the childs record
about physical examinations performed. Be wary of reports that say,
"Everything looks okay." Instead, look for written findings
that include explicit information about the head, eyes, nose, throat,
chest, heart, abdomen, etc.
Tests for certain diseases, such as hepatitis B, HIV or syphilis are
not standardized and are performed inconsistently. Parents need to
know that the accuracy of those tests done in other countries cannot
be guaranteed. In China, Russia and Eastern Europe, adoption specialists
have found that laboratory testing for hepatitis B is wrong 6 - 10
percent of the time. Parents should be sure they understand who pays
for these tests. Sometimes its included in the agency fee, but
repeat tests may be extra.
Look in the record for discussion of the childs development,
such as the age at which the child rolled from back to stomach, followed
a toy with the eyes, sat alone, crawled or stood alone.
Expect a video of the child if coming from Russia or Eastern European
countries, such as Lithuania or Romania, where this is a standard
practice. If there is not a video available, that should raise a red
flag. As a rule, agencies working in South Korea, China, Southeast
Asia and South America do not provide videos.
Talk with other agencies and parents to see if the information you
are getting is detailed and complete, or very scanty.
Beware of agencies that guarantee a perfectly healthy child or seem
reluctant if you seek medical advice. A realistic approach to the
issues of adoption is preferable to a Cinderella story. Remember,
these are children who, in many cases, have spent a lot of time in
orphanages. The child may even be an older child who remembers his
separation from his biological parents and now has to attach again.
Unique problems
In addition to the overall guidelines, each country has its own unique
issues. Children from Russia and Eastern Europe, for example, have
a higher percentage of fetal alcohol syndrome. Theres a higher
prevalence of hepatitis B in China, where 8 to 10 percent of women
of childbearing age are infected. In Korea, watch for TB.
In Russia and in South American countries, syphilis is more common.
Adoptions from South America should include DNA testing to make sure
the woman who has surrendered the child is actually the childs
mother.
Dr. Hostetter is
professor and chief of pediatric immunology at Yale University School
of Medicine and director of the Yale Child Health Research Center.
|